The death of a client is an inevitable part of home care. Whether it’s expected or comes as a surprise, knowing what to do can make all the difference. If you’ve experienced this before, you’ve likely learned a few lessons. If not, this guide will help you prepare for when it happens.
When a Client Dies Expectedly
In the best-case scenario, clients with life-limiting illnesses are on hospice care. Their medical team provides the necessary support, and everyone knows what to expect. Here’s what typically needs to be done:
- Call the hospice company immediately. They will take over the process.
- A hospice RN will pronounce the client’s death and arrange for the funeral home.
- Families are usually given time to grieve and say their goodbyes.
This process is smoother when expectations have been discussed in advance.
When a Client Dies Unexpectedly
Unexpected deaths, caused by falls, strokes, heart attacks, or undiagnosed conditions, are more complex. Here’s what to do:
1. Call 911 immediately. Emergency services will handle the pronouncement and notify the medical examiner if needed.
2. Prepare for an autopsy. Sudden deaths often require an autopsy, especially if the client wasn’t elderly.
3. Avoid post-mortem care. Caregivers should wait for instructions from authorities before taking any steps.
These situations can be traumatic for caregivers. Whenever possible, send administrative staff to support them and manage the situation.
Supporting Your Caregiver
Witnessing or discovering a client’s death can be emotionally challenging for caregivers. It’s essential to provide support:
- Offer access to counseling or mental health resources.
- Allow time off if needed to process the experience.
- Check in regularly and encourage open conversations about their feelings.
Hospice chaplains can also offer counseling, which can be a valuable resource. Ensure caregivers know they’re not alone.
Preparing for End-of-Life Care
End-of-life care is a significant part of home care and comes with unique challenges. Hospice involvement often begins when a doctor determines a client has six months or less to live. Even if the client appears healthy initially, everyone understands that death is a possibility.
Conversations with Caregivers
When assigning caregivers to hospice clients, be upfront about the situation. Ask them:
- “Will you be okay if this client dies while you’re on shift?”
Respect their answer. For those who are comfortable, provide training on topics like:
- Recognizing changes in a dying body
- Preparing the body after death
- Supporting family wishes and emotions
Shifting the Focus in End-of-Life Care
Caring for a hospice client requires a mindset shift. Caregivers often focus on keeping clients active and healthy, but with hospice care, the goal becomes comfort and dignity.
Talk to caregivers about this change. Help them see that their role isn’t about “fixing” anymore but about ensuring the client’s final days are peaceful. Without this understanding, caregivers might feel like they’ve failed their client, which isn’t true.
Losing a client is one of the hardest parts of working in home care. By having clear protocols, supporting your caregivers, and fostering open communication, your agency can handle these moments with professionalism and compassion. End-of-life care is about more than just the client—it’s about supporting everyone involved. With preparation, you can navigate this delicate time with care and confidence.
That's my advice for now! I hope that this was helpful for any of you. Please reach out if you have any questions. candyce@slusherconsulting.com
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